Tackling Data Dilemmas in Social Care Coordination: A Whitepaper on Community Information Exchange

Last year – with sponsorship from Robert Wood Johnson Foundations’ DASH program, and in partnership with the Regional Data Alliance at University of Missouri St Louis – I co-authored a whitepaper that aggregated research and recommendations from across the emerging field of “social care coordination.”

This paper provides a strategic framework in which to understand Open Referral’s work in the context of human service directory data infrastructure and governance, and it also offers a broader view of the related but very different challenges of sharing information about people through coordination among service providers.

The whitepaper is available in PDF here – as well as in this ‘live’ version upon which we invite readers to share feedback. Having received significant positive feedback from experts in the field of healthcare informatics, I’m excited to share it here with the Open Referral community.
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Improving access to legal aid by improving search results with schema.org

Despite the vast amounts of information on the Web, finding reliable information about legal services through internet searches is harder than many expect. Basic searches — for needs like assistance with evictions, help with public benefits, or protection from domestic violence — often turn bewildering as results on Google, among other search engines, typically seem unhelpful and untrustworthy.

Every U.S. state has legal aid organizations to help people who can’t afford private law firms. But these organizations rarely have the capacity to specialize in Search Engine Optimization that can compete with private firms and even scammy operations that tend to dominate search results.

Search results don’t have to be as hit-or-miss as they are today. One promising method of improving search results is by adding specialized tags – i.e. “web markup” – to legal aid websites that help web engines better identify and index their information.

Schema.org – which represents a coalition of the major web platforms – produces such web markup for smarter search results. With schema.org’s standardized vocabulary, websites can ‘mark up’ otherwise unstructured text into structured data that can be semantically ‘understood’ by search engines.

When Open Referral first began, we worked in collaboration with the team that developed the first version of the ‘Civic Services schema’ at schema.org. We were particularly motivated by their vision of a future in which anyone could use colloquial language in their searches and easily get reliable, richly detailed results. Finally, through partnership with legal aid providers in Florida and around the country, we now have our first glimpse of that future. Continue reading

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Evolving the DC Community Resource Information Exchange’s Inventory Capabilities

In the District of Columbia, we’re developing a new approach to the very old problem of resource directory information management. Years ago we shared the story of the first phase of our work here on this blog, and we’re now excited to share results from our second phase. 

The DC Community Resource Information Exchange initiative (DC CoRIE) is an initiative to develop infrastructure and capacities to support coordination of care across health and social service sectors in the District of Columbia. Led through partnership among government agencies, community organizations, and technology providers – including the DC Department of Health Care Finance, the DC Primary Care Association and its DC-PACT coalition, and CRISP DC – DC CoRIE seeks to enable exchange of information about resources, and about people, across diverse organizational contexts and technology systems, in promotion of equitable health outcomes. 

One of DC CoRIE’s primary goals is to establish a sustainable supply of comprehensive, reliable information about the resources available to people in need. In 2019, we discussed this goal with a group of people who already maintain resource directories, and named the central challenge of this problem: resource directory information requires significant effort to reliably maintain, and at the same time, people want to use it not just in one “centralized” system but across an ecosystem of distributed contexts and technologies. In order to pursue this vision of a healthy information ecosystem, we resolved that our work should leverage the assets that are already in our community. (See the report from our participatory deliberation process here). Together, we identified three objectives for this phase: 

  1. Prototype resource directory information system that is designed for interoperability – such that the contents of the CRI could be accessed by any third party system.
  2. Develop a collaborative network of data stewards who will support this system by sharing data management responsibilities.
  3. Demonstrate the potential for this system to serve as a canonical source of open data about local human services.

In 2021, we accomplished each of these objectives – and we are now initiating our next phase, through which we will formalize this framework. Check out our final report for this phase here.

Below, we’ll provide more context for our project’s objectives and the path ahead.

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UK Government endorses Open Referral UK

Welcome back to our blog Mike Thacker of Porism Limited. Porism is a technical partner of the Local Government Association (LGA), a membership organisation of English local authorities which owns the Improvement and Development Agency for local government (IDeA). Porism also works with iStandUK, a local government standards body that promotes efficiency, transformation, and transparency of local public services in the UK. 

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On March 16th 2022 the UK Government Data Standards Authority Steering Board formally endorsed Open Referral UK (ORUK).

Endorsement means that UK central government departments should apply the standard in future for interchanging open data describing services. Though this does not amount to a mandate for use of the standard by local governments and “arms-length bodies” such as the National Health Service (NHS), it does build upon the Local Government Association’s early adoption as reported here in 2019 – and the NHS has already established requirements in its Health Systems Support Framework that Social Prescribing systems must (after a grace period allowed for adoption) be able to read from Open Referral UK compliant data feeds. These developments build upon a significant uptake of adoption in our sector among initiatives like LOOP, and encourage further alignment among related institutions.

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Supporting the Gravity Project to expand interoperability among health, human, and social services

Often people ask how we enable care providers to actually refer their clients to another service. The answer is, well, Open Referral doesn’t actually deal with the process of “making a referral” at all!

We’re working to ensure that there’s open access to information about the services to which someone might be referred. 

But the challenges related to actually sending a person’s information from one provider’s system to another? That’s a whole other tangle of knots. I’ve long hoped that someone somewhere would work on those problems, while believing it should remain outside Open Referral’s scope.

So I’m excited to see that this work is now under way.

The Gravity Project is like kin to the Open Referral Initiative: Gravity is a community of practice that is developing and testing consensus-based open standards to facilitate capture and exchange of data pertaining to people and their social circumstances across a variety of healthcare and social service systems.
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LOOP: Resource Data Collaboration, Live at Leeds

Leeds, a city in the North of England, has developed an open-source API-based service directory data infrastructure. LOOP (Leeds Open Online Platform) provides a way for the city’s local authority, voluntary sector and private partners to collaborate on a shared information repository.

The City Digital Partnerships Team is currently leading the project. We are hosted by Leeds City Council (the local authority of the city of Leeds in West Yorkshire, England), but our focus is to work together across all of the organisations that deliver health and social care to the people in the city.

LOOP re-uses elements from a project in Kingston-upon-Thames in London, in which a local authority used the Open Referral data model to build a MySQL database with APIs and an admin interface. Through LOOP, third parties can build their own websites and systems that connect to our API. We’re also developing a cross-platform widget that can render content on other websites.

 

Initially this project didn’t have any specific interoperability or integration requirements – but we quickly recognised there are benefits of being a part of a broader community of practice, and the potential to exchange interoperable technology in the future. We also knew that, in order to bring together many partners, it was vital to have a data standard to which all could agree. That’s why we enthusiastically decided to use the Open Referral data model.

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Upgrading the Human Service Data API protocols to 2.0

[Ed: This post is from Kin Lane, author of initial Human Service Data API protocols, and now Chief Evangelist at Postman, an API development platform. Welcome back, Kin!]

Now that the Open Referral Initiative has upgraded to version 2 of the Human Service Data Specification (HSDS), we’re commencing a subsequent upgrade to version 2 of our Human Service Data API protocols (HSDA).

We now invite members of the Open Referral community to contribute feedback – especially use cases, specific feature requests, and example OpenAPI definitions – that can shape the iteration of these API protocols and, in turn, facilitate the emergence of interoperable, reliable resource directory information infrastructure. Continue reading

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Open Referral’s 2020 Year in Review

Amid the disruptions and crises of 2020, the Open Referral Initiative rallied to meet increasing and rapidly changing needs for improved flow of information about community resources.

As our new year starts to take shape – with collective needs for collaboration still rising unabated – we’ve taken some time to reflect on our progress and accomplishments.

Check out our 2020 Year in Review, embedded below – or viewable and downloadable directly from this link. Continue reading

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