Last year – with sponsorship from Robert Wood Johnson Foundations’ DASH program, and in partnership with the Regional Data Alliance at University of Missouri St Louis – I co-authored a whitepaper that aggregated research and recommendations from across the emerging field of “social care coordination.”
This paper provides a strategic framework in which to understand Open Referral’s work in the context of human service directory data infrastructure and governance, and it also offers a broader view of the related but very different challenges of sharing information about people through coordination among service providers.
The whitepaper is available in PDF here – as well as in this ‘live’ version upon which we invite readers to share feedback. Having received significant positive feedback from experts in the field of healthcare informatics, I’m excited to share it here with the Open Referral community.
We’re excited to introduce a set of tools that make it easier to standardize resource data.
Community resource directory data (i.e., information about health, human, and social services available to people in need) is deceptively complex. In order to accurately represent the relationships between organizations, the services they provide, and the locations they are offered, Open Referral’s Human Service Data Specification (HSDS) calls for multiple tables, linked together — which can be challenging to work with. HSDS addressed this challenge by calling for a set of CSV files to be bundled together by a ‘datapackage’ which would specify the tables’ contents and relationships in a single machine-readable file.
Few of the members of our community, however, were familiar with datapackages and how to create them. So we’ve now made it easier to facilitate this complex approach to resource data sharing!
Thanks to the Open Knowledge Foundation, which developed the standard format for JSON datapackages, we’ve now upgraded our specification and associated tools to make it easier to produce, share, and read standardized resource data in the HSDS format, datapackage and all. Continue reading
The District of Columbia’s community of health, human, and social service providers are struggling with a familiar challenge: they want to be able to more effectively coordinate care among their patients and clients, yet their systems can’t currently ‘talk’ to each other.
In response to this issue, DC’s Department of Health Care Finance (DHCF) initiated the DC Community Resource Information Exchange (DC CoRIE) to develop data infrastructure that supports coordinated screening, referral and tracking across a range of health, human, and social services in DC. DHCF selected the DC Primary Care Association (DCPCA) and Open Referral to lead an initial planning phase to help understand how to build infrastructure that would facilitate these functions. As part of this planning phase, we were tasked with the development of a Community Resource Inventory that can sustainably aggregate up-to-date information about the health, human, and social services available to DC residents. Continue reading
After two years of development, we’re pleased to share details of our successful Florida Legal Aid Resource Federation pilot!
Initiated in 2016 (see our original post here) and completed in 2018, with support from the Legal Services Corporation and the Florida Bar Foundation, the Florida Legal Aid Resource Federation (FLARF) was a complex project with a simple goal:
We aimed to ensure that accurate information about Florida’s legal aid providers can be reliably updated by those providers in one place – one official record! – and subsequently shared as standardized, canonical open data. (This pilot goal was directly in the service of our ultimate goal: to ensure that this information can be found and used in any given channel through which someone might look for it.)
The pilot phase of this project has concluded successfully!
The FLARF pilot yielded a functioning ‘beta’ system through which resource data can be shared among every organization that receives grants from the project’s primary funders. (This includes about 90% of the legal aid resources in the state!) This information is now accessible to each legal aid provider in Florida within their own case management system – improving their ability to refer clients from one legal aid provider to another.
We’re now beginning work on additional implementations that will make this data accessible through more and more channels (such as through integration with resource referral call centers, medical-legal partnership programs, even just better search results in Google, etc).
Read our complete final report on this project here. Continue reading
Open Referral’s Human Service Data API protocols (HSDA v1.2) are ready for use!
Check out our documentation site here.
Use our live developer portal here.
Finally (for geeks and non-geeks): read the report on this phase of our development.
And read more about this exciting new chapter below: Continue reading
Last year, the Miami Open211 project set out to demonstrate that an information-and-referral helpline operator can evolve into an open platform — providing machine-readable data as a service to its community — in ways that are both technically efficient and institutionally sustainable.
This project, which began in partnership with Switchboard of Miami, was Open Referral’s first formal pilot with a 2-1-1 provider.
Last week, we submitted the final report for this first phase of innovation. Many thanks to the Children’s Trust of Miami-Dade County, which funded our experiment, and Jewish Community Services of South Florida, the new steward of Miami-Dade’s 2-1-1 service. With their blessing, we are excited to share our findings with the Open Referral community.
See the Final Report document here.
And check out a summary of our key accomplishments below. Continue reading
The Open Referral Initiative’s next chapter starts now!
Open Referral has helped over a dozen community organizations find new ways to share resource directory information about the health, human, and social services available to people in need. Our Human Services Data Specification provides a common ‘machine language’ that any technology can be programmed to understand. This work has spurred a proliferation of ‘Application Programming Interfaces’ (APIs) — which publish machine-readable resource data for third-parties to query in real-time, so they can repurpose it in new ways.
So our newest mission is to establish interoperability across this new wave of resource directory APIs, so that machine-readable data about human services can be easily accessed and shared with a common protocol — regardless of technology, jurisdiction, organizational status, etc.
Toward this end, we’ve received funding from the Markets for Good program — which is now a part of the new Digital Impact initiative (digitalimpact.io) hosted by the Digital Society Lab at Stanford’s Center for Philanthropy and Civil Society!
Read Markets for Good’s announcement here. Continue reading
In late September I had the privilege to discuss our work at the Data for Good Exchange, a symposium hosted by Bloomberg.
As part of the event, I presented a paper which you can read here.
Much of the paper recaps the thinking and work behind the Open Referral initiative to date…. Then, taking into account some of the lessons we’ve learned over the past year, I editorialize a bit. Continue reading