We’ve partnered with 2-1-1 Maryland over many years, so we’re especially proud of their recent partnership with CRISP – Maryland’s Health Information Exchange – and Maryland’s Department of Health. This year, we helped 211MD and CRISP develop a groundbreaking partnership with MDH’s Primary Care Program. The results of this partnership point to exciting new horizons for coordination between healthcare, social service providers, and information-and-referral services. It’s a glimpse of a future in which reliable information about social services is easy to find and use wherever people might be able to benefit from it – including right in your doctor’s office. Continue reading
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Washington Communities for Children: developing the resource directory information supply chain
Washington Communities for Children (WCFC) is a network of early childhood coalitions – groups of local parents, child care providers, non-profits, public agencies, school districts, etc. – dedicated to improving the wellbeing of children, families, and communities acrossWashington state.
In 2022, the Washington State Department of Health enlisted WCFC in its Early Childhood Comprehensive Systems (ECCS) programto develop strategies to identify local and culturally appropriate services and update resource and referral directories.
WCFC partnered with Open Referral’s leadership to design and facilitate their strategy – and we are excited to share the report from the second phase of our work. (Download the report as a PDF here https://static1.squarespace.com/static/5c43b3ae50a54f5dfe95fdba/t/650c74c81db5c572a581599f/1695315146967/ECCS+Program+Phase+2+Summary+Report+%281%29.pdf) Continue reading
HSDS is now interoperable with FHIR®
As integration of healthcare and social care sectors becomes an ever-hotter topic, we’re excited to announce that we’ve taken a small but significant step forward: the Human Service Data Specifications are now aligned with the protocols for healthcare provider directory information specified by the Health Level Seven (HL7®) Fast Healthcare Interoperability Resources (FHIR®).
Introducing Profiles: customize our standard for your domain!
We designed the Human Service Data Specifications (HSDS)to make it easy to share information about human services of any kind. But given the many nuanced differences across human service sectors – and states and countries and etc – it’s just not feasible to standardize every possible kind of information associated with any kind of service anywhere. So we didn’t try to do that!
Instead, HSDS standardizes the most common information elements that can be expected in virtually any service – which turns out to be a relatively small set of fields, especially when it comes to the core requirements. This ensures that HSDS is relatively practical to adopt; however, at the same time, we do want users to be able to share additional information that is important to their communities even if not specified in the core format. To strike this balance, we’ve encouraged adopters to develop extensions through which they could include information that HSDS does not specify.
Now, with the publication of the new and improved HSDS version 3.0, we’ve gone even farther in enabling users to customize the specification to meet their specific needs, while preserving interoperability across our diverse ecosystem.
HSDS 3.0 supports “Profiles” through which adopters can publish a formalized set of extensions, constraints, and enumerations that together amount to their own tailored version of the standard. Continue reading
Introducing Version 3.0 of the Human Service Data Specifications
UPDATE: As of May 1st 2023, this upgrade is considered official! Thanks to our workgroup and all those in the community who contributed input. Read below for details.
[This post is from Dan Smith, Open Data Services Cooperative‘s Partnerships Lead for Health, Social and Physical Activity Data. Welcome, Dan!]
We are excited to share a proposal for version 3.0 of the Human Service Data Specifications – available now for a final period of review and comment by our community.
We have been working toward this proposal for much of the past year, in a community-led process of gathering input about emerging and outstanding needs across our expanding network of human service informatics. … We are excited to share the fruits of this process with the broader community.
Request for Comment period for HSDS 3.0
This post marks the beginning of a final two-week Request for Comment period. During this time, our community can review and submit any final issues that may need to be addressed before HSDS 3.0 is formally approved by the working group.
We expect version 3.0 to be the last significant HSDS upgrade for a while, so if you have any questions or concerns about its suitability for your current or future potential use of HSDS, please raise them now.
How to provide feedback on HSDS 3.0
We encourage you to share feedback on the proposed version 3.0 in the following ways: Continue reading
Introducing the Whatcom County Resource Information Collaborative
This post is brought to us by Kristi Slette, Secretariat of the Whatcom Resource Information Collaborative in Washington state. Welcome, Kristi!
Washington state’s Whatcom County – the north western most county in continental U.S. – is a resourceful community with many collaborative community-based organizations that serve residents in need.
For many years, the leadership and staff from many of these organizations have voiced a desire to improve the accessibility and reliability of information about resources available in our community. In the past, this desire sparked several attempts to develop a centralized resource directory – but in each instance, our vision was hampered by the complexities of this challenge. We all shared the same goal, but different organizations had different needs and interests; when it came time to address all of them in one single website, we struggled to move forward together.
Learning from the past
In 2019, a series of community assessments and strategic planning sessions once again surfaced the need for a resource directory as a priority for Whatcom County, and a coalition of human and social service organizations convened to address this challenge with fresh eyes. This time, we sought to learn from previous efforts.
Through extensive dialogues with three different groups – social service providers who had been involved in the previous resource access initiatives, the conveners of those initiatives, and managers of current resource directories in our area – we perceived a set of key themes: the importance of leadership, human capacity, and buy-in from the community.
Through this reflection, we recognized that technology – which had previously been our primary focus – is actually only part of the solution. Rather than just designing a new tool, our new initiative would need to focus on building the capacities and relationships that will be needed to ensure that any such system is adaptive, sustainable, and trustworthy.
Building capacity for collaboration
In 2021, having made it a priority to improve access to resources for families with young children, the Whatcom County Health Department provided some seed funding to support our new initiative to establish a resource directory information system for the county. This time, we resolved to build a system that would be collectively “owned” by our community as a whole. Continue reading
Michigan 211’s new resource data infrastructure: providing social service information as a service
Since the onset of the pandemic in the spring of 2020, Michigan 211 has received an increasing number of requests for real-time access to our social service directory database from partners and collaborators across the state. We actively maintain over 40,000 service records offered throughout Michigan, verifying its accuracy on an ongoing basis – and carefully curating this information to connect community members to local services. When initiatives like one of Michigan’s new behavioral health services wanted to leverage our information to improve their ability to meet the needs of their callers, we wanted to ensure that this critical information can be available where and when they need it.
To address this emergent need, 211 made the strategic decision to develop a cloud-based service that securely provides direct access to our resource database for third-party partners – our “social service directory data service.” Toward this end, we partnered with Brightstreet Group as our technology consultants, and adopted Open Referral’s Human Service Data Specification as the technical blueprint for resource data service.
By building this service on the foundation laid by Open Referral – from data exchange standards to an array of tools and strategic insights for new forms of resource data partnerships – we were able to focus our resources on meeting the unique needs of our partners and community at large.
Upgrading the Human Service Data Specifications: 2022 development cycle underway
As Open Referral’s network grows – involving more stakeholders in the development of interoperable resource directory information supply chains – our tools and practices must evolve in kind to support more complex needs.
So we are excited to share that Open Referral has initiated a new development cycle to upgrade the Human Service Data Specifications. This cycle has kicked off with a specific objective to address a significant issue: our specifications need to be adapted across diverse contexts, to support different conventions in different places, while preserving a core of interoperability across our ecosystem.
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To support this workgroup’s efforts, we are seeking feedback from a broad array of stakeholders across our network. For instance, this Friday (July 22nd) from 11a-1p, we will host an open “fishbowl” discussion in which workgroup members will review proposals line-by-line, at which any members of our community are welcome to observe and discuss by chat – invitations available by request. We encourage interested parties to comment on the documents above, or discuss in our issues queue on Github, or reach out directly via [email protected]
Continue reading
Evolving the DC Community Resource Information Exchange’s Inventory Capabilities
In the District of Columbia, we’re developing a new approach to the very old problem of resource directory information management. Years ago we shared the story of the first phase of our work here on this blog, and we’re now excited to share results from our second phase.
The DC Community Resource Information Exchange initiative (DC CoRIE) is an initiative to develop infrastructure and capacities to support coordination of care across health and social service sectors in the District of Columbia. Led through partnership among government agencies, community organizations, and technology providers – including the DC Department of Health Care Finance, the DC Primary Care Association and its DC-PACT coalition, and CRISP DC – DC CoRIE seeks to enable exchange of information about resources, and about people, across diverse organizational contexts and technology systems, in promotion of equitable health outcomes.
One of DC CoRIE’s primary goals is to establish a sustainable supply of comprehensive, reliable information about the resources available to people in need. In 2019, we discussed this goal with a group of people who already maintain resource directories, and named the central challenge of this problem: resource directory information requires significant effort to reliably maintain, and at the same time, people want to use it not just in one “centralized” system but across an ecosystem of distributed contexts and technologies. In order to pursue this vision of a healthy information ecosystem, we resolved that our work should leverage the assets that are already in our community. (See the report from our participatory deliberation process here). Together, we identified three objectives for this phase:
- Prototype resource directory information system that is designed for interoperability – such that the contents of the CRI could be accessed by any third party system.
- Develop a collaborative network of data stewards who will support this system by sharing data management responsibilities.
- Demonstrate the potential for this system to serve as a canonical source of open data about local human services.
In 2021, we accomplished each of these objectives – and we are now initiating our next phase, through which we will formalize this framework. Check out our final report for this phase here.
Below, we’ll provide more context for our project’s objectives and the path ahead.
UK Government endorses Open Referral UK
Welcome back to our blog Mike Thacker of Porism Limited. Porism is a technical partner of the Local Government Association (LGA), a membership organisation of English local authorities which owns the Improvement and Development Agency for local government (IDeA). Porism also works with iStandUK, a local government standards body that promotes efficiency, transformation, and transparency of local public services in the UK.
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On March 16th 2022 the UK Government Data Standards Authority Steering Board formally endorsed Open Referral UK (ORUK).
Endorsement means that UK central government departments should apply the standard in future for interchanging open data describing services. Though this does not amount to a mandate for use of the standard by local governments and “arms-length bodies” such as the National Health Service (NHS), it does build upon the Local Government Association’s early adoption as reported here in 2019 – and the NHS has already established requirements in its Health Systems Support Framework that Social Prescribing systems must (after a grace period allowed for adoption) be able to read from Open Referral UK compliant data feeds. These developments build upon a significant uptake of adoption in our sector among initiatives like LOOP, and encourage further alignment among related institutions.